Treatment & Adherence

Treatment guidelines for cystic fibrosis

This is non-exhaustive list

European Union

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Best practice guidelines by the European Cystic Fibrosis Society (ECFS), 2018

This guideline is a revision of the ECFS best practice guidelines published in 2014, updating standards for best practice in key aspects of cystic fibrosis care.

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United Kingdom

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Cystic fibrosis: diagnosis and management, 2017

The National Institute for Health and Care Excellence (NICE) guideline [NG78]

This guideline covers diagnosis and management of cystic fibrosis. It specifies how to monitor the condition and manage the symptoms to improve quality of life.

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This summary article of the guideline NG78 has been reviewed and approved by NICE, and is available in different languages:

Brazilian (Portuguese) | EnglishGermanSpanish | Polish

Brazil

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Brazilian guidelines for the diagnosis and treatment of cystic fibrosis, 2017

These guidelines from Grupo Brasileiro de Estudos de Fibrose Cística aggregate key scientific evidence to guide the management of patients across Brazil.

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United States

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Cystic fibrosis pulmonary guidelines, 2013

Chronic medications for maintenance of lung health

Systematic review of guidelines by the Pulmonary Clinical Practice Guidelines Committee on chronic medications for the maintenance of lung health.

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Cystic fibrosis adult care, 2004 

Consensus conference report

Systematic review of guidelines by the Pulmonary Clinical Practice Guidelines Committee on chronic medications for the maintenance of lung health.

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Cystic Fibrosis Foundation pulmonary guidelines, 2018

Use of cystic fibrosis transmembrane conductance regulator modulator therapy in patients with cystic fibrosis

Cystic Fibrosis Foundation clinical practice guidelines endorsed by the American Thoracic Society.

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