Resources
For patients
About cystic fibrosis and its treatment options
This video explains the pathophysiology and current treatment options of cystic fibrosis in plain language that can be understood by younger patients. It can help in the communication with patients and their caregivers so that they better understand the underlying cause of cystic fibrosis and learn more about the available treatment options.
Cystic fibrosis and how to live with it explained for children
"Getting nosey about CF" is all about Oli explaining to Nush what cystic fibrosis is and how he lives with it. This short animated video, supported by the Cystic Fibrosis Trust, is intended to help children to better understand the disease and how it affects their daily lives.
Practical tips on living with cystic fibrosis, Cystic fibrosis foundation (CFF)
Watch this video series providing solutions for difficult life situations, such as school transitions, which people with cystic fibrosis and their families are confronted with.
National cystic fibrosis associations
Help your patients stay connected and support each other. The links to national cystic fibrosis associations can help patients and their caregivers to stay connected and to support each other.
Children’s book that tells the story of Milo the beaver, who has cystic fibrosis
Available in Italian.
For clinicians
Medical education courses
European Cystic Fibrosis Society (ECFS) eLearning platform
Course:
A tour of cystic fibrosis: The essential toolkit series held at the 40th European Cystic Fibrosis Conference in Seville, Spain Available in English and Spanish (for ECFS members only)
Topics:
The cause, diagnosis and microbiology of cystic fibrosis. A guide to respiratory treatments, nutrition and physiotherapy. Management of cystic fibrosis–related diabetes and psychosocial challenges.
Roche sponsored ECFS symposium
Topics
The clinical perspective of today’s cystic fibrosis care modalities (Benedetta Fabrizzi, Ancona, IT)
The broadened role of physiotherapy in today’s cystic fibrosis management (Hugues Gauchez, Marcq-en-Baroeul, FR)
Cystic fibrosis care and the patient, a holistic approach from the nurses’ view (Nichola MacDuff, Wolverhampton, GB)
A patient’s view of current and future needs in cystic fibrosis care (Tim Wotton, Wimbledon, GB)
